I don't understand the hospital why they decline to let the parents take Charlie home to die.
myself experienced a similar scenario. We were told Andrew would die
the evening he was born. We stayed at NICU because I couldn't handle it.
Andrew did not die, towards the last ten days, he was having apnea, and
the first time, we all thought he had died. Through out his 55 days,
the hospital had asked if we wanted to bring him home for a short stay.
They would provide oxygen. I did not do it. The hospital was very
respectful of our feelings.