Monday, February 29, 2016

Youtube It's ok to cry and rare disease day



When I wrote my book, Diary of a bereaved mother, it was to help new 

bereaved mothers and to help myself. Television New Zealand asked me 

if I wanted to help them do a documentary. It was to help other 

bereaved mothers.

It was very hard to do the documentary.

Today is is world rare disease day.
 


 http://www.youtube.com/watch?v=IZk9w-uywAs&feature=youtu.be







http://www.youtube.com/watch?v=IZk9w-uywAs&feature=youtu.be

The TV Program is available in New Zealand only.
http://tvnz.co.nz/asia-downunder/s2011-e31-video-4453514

http://www.rarediseaseday.org/article/what-is-rare-disease-day 

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.


Rare Disease Day



winter birds.






Rain in the afternoon,
Rain in the evening,
Rain in the night.

Feeling poignant,
I look at the rain,
and feel that they are tears inside me.

I remember this poem I wrote.

 It is blustery cold.
In 4 days,
It will be the shortest day of the year.
The wind is howling,
The rain is pouring.

Oh  _____,
The b______ birds,
They have come in the house again.
I go ______. ______, _______.
I have lost my poetic mood.
Get out! bird, _________.

Billy Ung I was walking along Hoddle St one morning after a stormy night. The medium strip was littered with dead sparrows. Mother Nature is unforgiving and only allows the fittest to survive. Sometimes just being fit is not enough in a natural disaster.



Rare disease day




Words of healing



A mother's account of the death of her newborn son has been turned into a book in the hope it will help other mothers heal. Rebecca Blithe meets the author. "The specialist said, 'You're going to have a normal baby'," says Ann Chin, as she sits with a pile of her recently published book, Diary of a Bereaved Mother.
But the days that followed the birth of her son, Andrew, proved anything but normal.
"Once I had my baby they realised he was dying," she says, of his diagnosis of Campomelic syndrome; a bone and cartilage condition resulting in short limbs and breathing problems because of a small chest capacity.

http://m.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11597016 

My Son Andrew had Campomelic displasia  or syndrome.  It is a rare disease.


http://www.rarediseaseday.org/article/what-is-rare-disease-day 

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.


Rare Disease Day

Sunday, February 28, 2016

Waikumete Cemetery: Open Day

 

 

 

 

 

 

 

 photo from Radio New Zealand

Words of healing



A mother's account of the death of her newborn son has been turned into a book in the hope it will help other mothers heal. Rebecca Blithe meets the author. "The specialist said, 'You're going to have a normal baby'," says Ann Chin, as she sits with a pile of her recently published book, Diary of a Bereaved Mother.
But the days that followed the birth of her son, Andrew, proved anything but normal.
"Once I had my baby they realised he was dying," she says, of his diagnosis of Campomelic syndrome; a bone and cartilage condition resulting in short limbs and breathing problems because of a small chest capacity.

http://m.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11597016 

Our national paper heads it as

Auckland's 'Day of Death',  would you go to a cemetery's open day?

 I got involved in Waikumete Cemetery, my late baby boy was buried here in 1989

The cemetery is New Zealand's largest, and the final resting place for over 70,000 people. At 108 hectares, it is also one of the region's largest public parks.
On Sunday, it will try to demystify the morbidity of death, displace some of the apprehension around cemeteries and burial practices, explain the historical relevance of cemeteries and explore cultural differences in the treatment of lost loved ones.

 

Wednesday, February 17, 2016

When Life Stands Still, Find Your Fellow Survivors

When Life Stands Still, Find Your Fellow Survivors

grief infant loss
Courtney Keating / iStock
“This will be the hard part.”
The words were spoken with a hush, gently and quietly as the dim lights softly flickered in a darkened hospital room while I held my 6 ½-month-old child, his last breath taken hours before.
After spending nearly seven months in a pediatric cardio thoracic ICU with my infant son, the hard part should have been behind me. And yet, it wasn’t. I knew it, but I didn’t want to know it.
Life stood still in that moment. I didn’t know how I would pick myself up and keep going. I was young, but my future just looked crumbly and I was buried in grief. All the perfect pictures I created of how my life would look months and years before weren’t my reality. Mine was supposed to look like two boys, 15 months apart, growing up together, playing cars on the living room floor, me breaking up fights with time-outs, them running out to the backyard and getting dirt under their fingernails as they dug for worms.

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I would have gray hairs by the time I was 30 and appointments with a colorist every month to keep me looking presentable, because the stress of having two lively and rambunctious boys would keep me running on coffee with no sleep. I’d drive them to playdates in my minivan (which I’d feign embarrassment over but secretly love). Daddy would come home, relieve me of boy duty, and then we’d all sit down at the table to eat the meatloaf I accidentally burned.
We’d talk, we’d laugh, and at the end of the night, I’d tuck them both into bed in the room they shared, kissing their foreheads and turning out the light. I’d complain about my lack of sleep and my lack of sanity and all the silly things they did. We’d be stressed, happy and slightly dysfunctional, but we’d be together. It would be normal. And as far as I knew, nothing would get in the way of that. As far as I knew, life would unfold without a hitch.
But none of those dreams would come true. Instead, I sit here on the other side of my younger son’s six-and-a-half-month-long hospitalization after he was born and postnatally diagnosed with a serious, severe form of congenital heart disease and another disease that I now know as a curse word: pulmonary hypertension. I sit here on the other side of his death, having held him in my arms as he breathed his last breath. I sit here on the other side of my divorce, one that had been a long time coming, and that only through my younger son giving me strength did I have the courage to do what I knew I had to do. I sit here on the other side of 11 months of grief—horrible, agonizing, grief. I sit here, seemingly crushed. I sit here, all of my former dreams shattered.

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And yet, I sit here, still breathing, still laughing, still relatively normal, and still a functioning human being. (Some days, even that is an accomplishment.) My soul has been crushed beyond despair, but in the crushing, something unexpected has happened. Like a tiny flicker within me, hope has arisen. Strength has arisen. My faith has become my backbone. I’m not there yet, but it’s through looking to those who have overcome that I survive.
I’m surrounded by fellow survivors, much further along in this journey through hell than I. People who have learned to carry on when their lives are reduced to ashes. People who have stood their ground through deep pain and searing loss. People who have learned what it is to will their own heart to keep on beating, who put one foot in front of the other, even when they limp. These ones are my teachers, my guides, and my brothers and sisters. They are the ones I look to and remember that no matter how hard life gets, I’m never alone.
From them, I’ve learned that the most radiant people aren’t the ones you see on billboards or whose names are in lights. It’s the quiet survivors who have been shattered beyond belief and have overcome. The ones who grit their teeth and carry on, day after day, clinging like hell to hope, even if it’s by a single strand.

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I’ve watched them. I’ve admired them. I’ve never understood their strength or their tenacity, but I knew I needed it. I knew to keep breathing, I had to have it. And I’ve learned that there’s a funny thing about being crushed. When your dreams have shattered, and you lose it all, you find what keeps you going. When you’re stripped bare, you find a strength that is at a soul level. You find the thing that keeps you taking the next breath when all reason tells you to stop. You find the true reason you live.
None of my former dreams have come to pass, and truly, they never will. This is the hard part, and yet, even in the darkest moments, in our deepest grief, when we reach out, reach up, and let love and hope in, we can claw our way back to hope and joy. We can take the next breath, and the next, and after time, we find that it comes a little more easily. We take the next step, and we realize that no matter how weak we feel, that we all can overcome.

About the writer

Lexi Behrndt is a writer and mom to two boys, one in heaven. She writes on her blog, Scribbles and Crumbs, and her work has also appeared on The Washington Post, The Huffington Post and ABC News. Find her on Facebook.

Tuesday, February 16, 2016

The Edge radio host reveals miscarriage trauma

The Edge radio host reveals miscarriage trauma

Sharyn Casey for Dancing with the Stars.
Supplied
Sharyn Casey for Dancing with the Stars.
Radio DJ Sharyn Casey has penned an emotional blog post about experiencing multiple miscarriages within the same year.
Casey and her husband, fellow DJ Bryce Casey, from The Rock, decided to speak out about their loss following a second unsuccessful pregnancy.

"We went through this pretty much in silence. Sure, our families knew, a couple of people we were very close to at work knew… but that was it."
"We were silent because we almost felt embarrassed that this [had] happened to us, we felt embarrassed to tell our closest friends," Casey wrote in an emotional blog post.

Help break the miscarriage taboo

Share your stories, photos and videos.
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Sharyn and Bryce Casey.
FACEBOOK/SHARYN CASEY
Sharyn and Bryce Casey.
"That was your baby. You had dreams for that baby. You loved that baby and you do not have to hide that."
The former Dancing with the Stars co-host revealed she was "happy beyond belief" when she first discovered she was pregnant.

"Every moment revolved around doing the right thing by my baby – what I ate, the exercise I did, not stressing myself… I have never felt such intense love for something I'd never met."
Matched set, Sharyn and Bryce Casey.
FACEBOOK/SHARYN CASEY
Matched set, Sharyn and Bryce Casey.
In her candid post, Casey described calling her sister after discovering she had miscarried at six weeks.
"It wasn't there, the baby is gone, it wasn't there".

The radio and television personality chose to speak up in order to encourage other Kiwi women going through similar experiences to do the same.
Sharyn and Bryce get wacky with their dog.
FACEBOOK/SHARYN CASEY
Sharyn and Bryce get wacky with their dog.
"I couldn't believe it when women that I idolised at work… pulled me aside and told me they had been through it," she wrote.

"Don't suffer in silence. Talk to people about how you're feeling, grieve for your loss and don't ever think you're less because you had [a miscarriage] because you're not."
 - Stuff

http://www.stuff.co.nz/entertainment/76898063/the-edge-radio-host-reveals-miscarriage-trauma?cid=facebook.post.76898063

Thursday, February 4, 2016

ann book cv


作者

Ann Kit Suet Chin-Chan.
 

Ann Kit Suet Chin is a New Zealand Chinese writer. She was born in Sibu, Sarawak, Malaysia. She attended Methodist Primary and Secondary School in Sibu. She graduated from Windsor University in Canada, Auckland University and Auckland University of Technology.

Ann is the fourth child of the late John Chan Hiu Fei and Mary Kong Wah Kiew. She is married to Chin Chen Onn, PhD. She has three surviving children, Deborah, Gabrielle and Sam. Her third child, Andrew died when he was a baby and is the inspiration of her first book.



作者 陈洁雪

洁雪是新西兰的华人,出生于马来西亚砂拉越的诗巫市。早年在诗巫卫理小学和卫理中学受中小学教育。大学毕业于加拿大的温舍大学、新西兰的奥克兰大学和奥克兰科技大学。

洁雪是已故陈鹞飞夫妇的女儿,家中排行第四。







Diary of a Bereaved Mother
吾儿再见:丧儿母亲的日记
ISBN 9780473187095 



This is a real life story of losing one's only son. This experience has made the author strong and caring. This tragedy has been a great help for her to help understand other bereaved people. The author is very brave to write this book. It has not been easy and she aims to touch,...

featured in the Aucklander.

I appeared in Television 1 Down Under program. It's ok to cry http://tvnz.co.nz/asia-downunder/s2011-e31-video-4453514 On baby bereavement.
I spoke in the Baptist Women's Annual Convention, North Island Chapter.
http://annkitsuetchin.blogspot.co.nz/2013/02/foreverinmyheartexhibition.html  
My book was exhibited  at the Peacock 
Art Gallery, Upton Country, Dorset, Park England.

I  presented a workshop on Asian Infant Bereavement at the Sands National conference for Sands families and medical personnels for 200 attendees in September 2013

Used as a reference book for NICU staff at the University Hospital, Toronto. 

Dr Simon Rowley is a consultant at Starship Children's Hospital who's been given a copy of the book.
"It is a good reminder to all health professionals that when our patients leave us, the story does not end for the parents. The detail is amazing, and every little thought and action seems to have been recorded as it happened, and then has been reflected upon.
"For parents undergoing similar experiences this book could be a great comfort. For health professionals, I would see it as essential reading."

http://www.nzherald.co.nz/aucklander/lifestyle/news/article.cfm?c_id=1503372&objectid=11030




海外华人的中国魂:

从中国,到南洋,到更

 2013
By Chin-Chan, Ann Kit Suet
ISBN 9780473239008  English
ISBN 9780473309626  Chinese






 


  •  
This is a hundred-year-old journal of two families, the Chans and the Kongs. It traces the first movement in 1907 from Kwang Zhou, China to the jungles of Borneo. It is a six-generational record with the second wave of movement to England, Canada, Japan, Singapore, Australia, USA ...










This book records with humor the life of a busy and active family through World War II, the formation of Malaysia and Confrontation. It is a personal reflection of a way of life that has moved on and provides insight into a family and its relationships. It is most of all a work of love and respect for the Chan and Kong families and for Father and Mother.

M M Ann Armstrong

Lodge International School

http://www.theborneopost.com/2013/12/01/words-of-healing-from-a-bereaved-mother/
She explained the people in Sarawak, especially among the Chinese community, could relate to the book as it traces their roots and identities.
“From China to Borneo and Beyond kindled a lot of interests in the state. I am very happy to hear a publisher is going to print a Chinese version of it.”
From China To Borneo and Beyond was her second autobiography book, which is a hundred year old journal of two Families, the Chans and the Kongs. The book contains records of historical events and current affairs endured by her family from 1907 to 2006 such as the Opium war, virgin tropical jungle, the Japanese World War, colonial days, revelation and fighting with the communists.
http://borneobulletin.brunei-online.com/index.php/2013/10/15/sibu-born-author-ann-chin-kit-suet-promotes-books/ 




邮购新娘

 




  •  
This book is about the embodiment of the darker side of today's society.
ISBN  978047325414-8


Published
1 July 2013





http://www.theborneopost.com/2013/12/01/words-of-healing-from-a-bereaved-mother/

a fiction novel – Mail Order Bride. The story, set in Auckland, New Zealand, touches on social issues such as teenage pregnancies, drugs, paedophile and the like. The book took two months to finish.

Her third book, Mail Order Bride is the first fiction piece from Ann. She said that the book targets an audience of young adults and that it appeals readers interested in social issues and ills that young adults have to face.


妇女的哭泣

 





Women suffers from oppression. This story traces the life of Nadine who overcomes her own problems of oppression, grows up to be a social worker and helps women who have suffered from physical and mental violence, domestic violence, rape, pornography, swinging, sex slavery, human ...
ISBN
9780473287153
Published
1 July 2014
Interest Age
All ages

Judy Lawson, Counsellor
A book I would use in my work as a reference. 



World War II in Borneo, Tales of my Grandpa
ISBN:9780473339005 (Pbk)


It is seventy years after the end of the World War II, or the Japanese occupation in Borneo. Captain Cheng aka Captain Fong and his Canadian soldiers are remembered in their role of leading the surrender of the Japanese.


I've been reading your book World War Two in Borneo: Tales of my Grandpa.  I was a bit hesitant to start it, since it is combined fiction and fact and I didn't want to get the history mixed up in my mind.  However,  I'm finding it very compelling to read.  

Canadian documentary maker, Keith Lock.


http://www.amazon.com/dp/B01BGRESX0/ref=rdr_kindle_ext_tmb

Traces the lives of 2 girls. The poor girl is sold to the rich girl as a slave aka mui zai to serve her for ever. Different Chinese Tradition are explained, and tragedy brings them to the South Seas. The Japanese invasion, the slave protects her mistress and is sent to a brothel as a comfort women.


http://www.wheelers.co.nz/shared/img/icons/silk/basket_add.png
http://www.wheelers.co.nz/shared/img/icons/silk/basket_add.png 

网址:http://annkitsuet-chinchan.blogspot.co.nz/2015/04/ann-in-chinese.html

     http://annkitsuet-chinchan.blogspot.co.nz/2015/11/ann-book-cv-november-2015.html