A bereaved mum writes to console fellow bereaved parents and to others to give an understanding to those who have suffered loss.
Tuesday, December 6, 2016
Don and Owlyn Dickson
I am reposting a five year old post. Don and Olwyn Dickson were wonderful to me. Don was with the ministry. Today, he died and went to heaven.
My book is out, I am invited to have a short talk at the Auckland and New Zealand's Baptist women's annual gathering. I will be given a table to sell my book.
I will be featuring the wonderful people who helped me walk my difficult journey.
This is Don and Olwyn Dickson. Don was the minister at the Auckland Baptist Tabernacle. Olwyn was with me when Andrew "died" that first time, Don was with me with Andrew was struggling. Olwyn said, I am available 24/7, and she said,"I am your mum now." ( My mum had died 20 months earlier)
Last year I posted in my Friday Shootout http://annkschin.blogspot.com/2010/12 for my thankful post. /fso-thankful-don-and-olwyn-dickson.html. God has blessed Olwyn for her elegant look. Twenty years had passed, she looks the same.
Sunday, November 20, 2016
Andrew's sisters
Wednesday, November 16, 2016
World Prematurity Day.
Sands Auckland Central
Today
is World Prematurity Day. A day to raise awareness of the 1 in 10
babies born premature each year in NZ, and to remember all babies and
families affected by preterm birth.
It is also a time to thank all the staff in the neonatal units across
the country for their care and support, and to the researchers looking
for ways to prevent or manage preterm birth.
Thursday, November 10, 2016
My latest book: The Playgroup
The Playgroup, paper back. ISBN 978-0-473-37871-4
Available at: Wheelers Books or from me, annkschin@Yahoo.com
eBook: Kindle Amazon ASIN: B01N0AWTOL
This book talks of a hotchpotch SAHM (Stay At Home Mums) jelled by a common denominator, the Playgroup. This book will resonate in women who went to Playgroup with their children or grandchildren. This hotchpotch include mothers of nuclear families, single families, bereaved parents, widowed, widowers, cancer survivors, volunteers, and so on. Issues like death, bereavement, cancer, adoption, fostering, and remarriage are sensitively discussed.
Monday, November 7, 2016
donation rather than flowers
When
my baby Andrew died in 1989, a very good friend gave me a pot of
Chrysanthemums. G said she didn't want to give me a bunch of flowers
since I had requested," No flowers, and in lieu of flowers, donations to
the hospital" Later, when the flowers were gone, she told me that I
could grow it in the garden. It thrived and flowered well. It gave me a
mixed feeling of my thoughtful friend G, and it also gave me feelings of
how much I missed Andrew. The flowers were almost like this burgundy
colour.
In my latest book, I wrote about a death, and donating money to the hospital.
In my latest book, I wrote about a death, and donating money to the hospital.
butterfly-blizzard
a symbol of joy, happiness, of spring, rebirth and renewal.
https://au.news.yahoo.com/a/33117128/queenslanders-wowed-by-butterfly-blizzard-in-the-south-east/#page1
The remarkable migration sees millions of butterflies flock to the south-east to lay 60-100 eggs each on caper bushes.
Local butterfly expert Ray Archer told the Sunshine Coast Daily the butterflies lay eggs in large numbers and then hatched caterpillars strip the shrubs to nothing.
Once done, the butterflies then head east.
Mr Archer said the butterfly migration was normal for this time for year but those this large were less common, happening only once every six to ten years.
He told Fairfax looking out his window at Bribie Island he could see up to 20 butterflies a minute.
https://au.news.yahoo.com/a/33117128/queenslanders-wowed-by-butterfly-blizzard-in-the-south-east/#page1
Hundreds of millions of butterflies have
flown to Queensland’s south-east in a beautiful display which is said to
happen only once a decade on this scale.
The phenomenon deemed a
‘butterfly blizzard’ is the Caper White or ‘common white’ butterfly
migrating from west of the Great Dividing Range to lay eggs.The remarkable migration sees millions of butterflies flock to the south-east to lay 60-100 eggs each on caper bushes.
Local butterfly expert Ray Archer told the Sunshine Coast Daily the butterflies lay eggs in large numbers and then hatched caterpillars strip the shrubs to nothing.
Once done, the butterflies then head east.
Mr Archer said the butterfly migration was normal for this time for year but those this large were less common, happening only once every six to ten years.
He told Fairfax looking out his window at Bribie Island he could see up to 20 butterflies a minute.
7 Things I’ve Learned Since the Loss of My Child
“If you’d like an inside look
into why the loss of a child is a grief that lasts a lifetime, here is
what I’ve learned in my seven years of trekking through the
unimaginable.”
http://faithit.com/7-things-ive-learned-since-loss-child-angela-miller/?utm_content=buffera2bb6&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer
By Angela Miller
Child loss is a loss like no other. One often misunderstood by many. If you love a bereaved parent or know someone who does, remember that even his or her “good” days are harder than you could ever imagine. Compassion and love, not advice, are what’s needed. If you’d like an inside look into why the loss of a child is a grief that lasts a lifetime, here is what I’ve learned in my seven years of trekking through the unimaginable.
She writes like me, or rather I write like her.
http://faithit.com/7-things-ive-learned-since-loss-child-angela-miller/?utm_content=buffera2bb6&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer
By Angela Miller
Child loss is a loss like no other. One often misunderstood by many. If you love a bereaved parent or know someone who does, remember that even his or her “good” days are harder than you could ever imagine. Compassion and love, not advice, are what’s needed. If you’d like an inside look into why the loss of a child is a grief that lasts a lifetime, here is what I’ve learned in my seven years of trekking through the unimaginable.
She writes like me, or rather I write like her.
Sunday, October 16, 2016
count your blessings, 家家有本难念经 Jiā jiā yǒu běn nán jīng
https://www.youtube.com/watch?v=9fMjgS4vu4o
家家有本难念经 jiā jiā yǒu běn nán jīng
This Chinese phrase means every family has a difficult prayer. Yesterday, with my Campomelic group, I found that some mothers have lost two babies. And today, I found out a friend lost her baby and then lost her ability to have any more babies.
When I was mourning, a friend told me this song,
Count them one by one.
Count your blessings,
This Chinese phrase means every family has a difficult prayer. Yesterday, with my Campomelic group, I found that some mothers have lost two babies. And today, I found out a friend lost her baby and then lost her ability to have any more babies.
When I was mourning, a friend told me this song,
Count them one by one.
Count your blessings,
Wednesday, October 5, 2016
SickKids Hospital in Toronto
In four days, it would be Andrew's 27 anniversary. I refrain to talk too much about Andrew and his book. To some, you may think I write too much. For me, my journey is sharing my life to help many bereaved parents and also those with special needs parents. Here is a message which validates my writing.
http://annkitsuetchin.blogspot.co.nz/2013/11/an-unexpected-message-from-grief.html
Ann, my name is Lori and I believe I recently read your book (I am in Toronto, Ontario, Canada) when Dr. Andrew James shared it with me. I believe he took care of your son. Am I correct?
If I am, I was blown away by your book- beautifully written. I hope you don't mind that I have written to you. Lori (Grief Support Nurse at SickKids Hospital in Toronto)
an-unexpected-message-from-grief.html
http://annkitsuetchin.blogspot.co.nz/2013/11/an-unexpected-message-from-grief.html
Ann, my name is Lori and I believe I recently read your book (I am in Toronto, Ontario, Canada) when Dr. Andrew James shared it with me. I believe he took care of your son. Am I correct?
If I am, I was blown away by your book- beautifully written. I hope you don't mind that I have written to you. Lori (Grief Support Nurse at SickKids Hospital in Toronto)
an-unexpected-message-from-grief.html
http://annkitsuetchin.blogspot.co.nz/2013/11/an-unexpected-message-from-grief.html
Ann, my name is Lori and I believe I recently read your book (I am in Toronto, Ontario, Canada) when Dr. Andrew James shared it with me. I believe he took care of your son. Am I correct?
If I am, I was blown away by your book- beautifully written. I hope you don't mind that I have written to you. Lori (Grief Support Nurse at SickKids Hospital in Toronto)
Thursday, September 1, 2016
Dr. Jane Warland. From one bereaved mum and writer to another.
From one bereaved mum and writer to another.
Dr. Jane Warland.
Jane
is a registered midwife and senior academic at the School of Nursing
and Midwifery at the University of South Australia. Since suffering the
unexplained term stillbirth of her daughter Emma in 1993, she has been a
passionate researcher into preventative and modifiable risk factors for
stillbirth as well as promoting public and maternity care provider
awareness of stillbirth.
When
we experience the death of a baby, we are reminded of the realities of
life and often our innocence and naiveté are gone. This awareness can
affect future pregnancies and the way we parent our living and/or
subsequent children. Being pregnant again can be a very anxious and
stressful time. The experience of this immense loss can shadow a
subsequent pregnancy and also impact on the way we parent. During this
session Jane will share her experiences and invite parents to ask
questions and share their experiences.
Monday, August 22, 2016
Rainbow baby
<iframe width="680" height="383" src="https://www.youtube.com/embed/vO8SBihAZKg" frameborder="0" allowfullscreen></iframe>
, I have a rainbow baby. His brother died at 55 days old. This video came out the very day I am writing my next book with a chapter on Rainbow baby.
https://www.kickstarter.com/…/lullaby-album-by-david-motola…
https://www.kickstarter.com/projects/1173292997/lullaby-album-by-david-motola-beardedpiano
Dear David, I am a grieving mother, and I have a rainbow baby. I am the writer of "Diary of a bereaved mother." Can it be fated that today, I write a chapter of my next book book on rainbow child and I come across you. I will not support you financially but I will publicise your appeal through Facebook, Blogs and my book. Thank you.
https://www.youtube.com/watch?v=vO8SBihAZKg
Friday, August 19, 2016
My ex pastor remembers his dead son
Eleven years ago we faced the devastating stillborn arrival of Toby Jack (TJ). Robyn and I visited his burial spot today with the anticipation of seeing him on the other side of this life. Looking back I am still so grateful for the support of people from all over the world who journeyed with us in this first taste of parenting. Each of you holds a special place in our lives.
Monday, August 15, 2016
A 14-year-old girl with Down syndrome died choking on a piece of meat
A 14-year-old girl with Down syndrome died choking on a piece of meat in Gloriavale Christian Community while shut in an isolation room.
Prayer Ready was in an isolation room with the door handles disabled to prevent people getting in and out when she choked on her dinner, according to a coroner's report into her death.
http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11694340
Little Eibhlin Wills was killed by the cold sore virus, treatable in adults, but potentially deadly for infants.
It was eventually discovered that Eibhlin had contracted it from the hospital where she was born.
According to John, "We know from tests that the virus was already in her system when she came home from the maternity hospital with us."
Devastated by their loss, John and Louis are working to raise awareness about the virus and its potentially deadly affect on infants.
The couple want to see policy changes made to prevent deaths like their daughter's and are campaigning for maternity welcome packs to include information on the virus.
They want Eibhlin's story told in antenatal classes, to have posters put up in clinics and medical students to be briefed about the virus too.
http://www.nzherald.co.nz/lifestyle/news/article.cfm?c_id=6&objectid=11694674
gangs upbringing.
The teenager who stabbed a rising rugby league star to death with a broken bottle had racked up 25 offences before he turned 16.
Vincent Angene Skeen, 18, even continued to offended while awaiting trial over the death of 17-year-old Luke Tipene.
Skeen was convicted of manslaughter after a second jury trial last month and was today jailed for five years and two months.
http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11694790
Tuesday, August 2, 2016
慈悲生命协会 - Compassion Life Society】
This guy is so great!
He took away from the hospital on thousands of nameless baby after 15 years to become a legend
2016-07-20 thankful for big love
Life for everyone to have a different meaning, but very few people can completely selfless spirit to respect every life. In Vietnam Khánh Hòa Province (KH ÁNH HÒA) in the coastal city of nha Trang (Nha Trang), there is a legend, his name is called song Ford (Ford tống p hư ớc phúc), For the past 15 years, the fox song Ford's own strength saved more than 100 babies.
It all started in 2001, the year of the fox song ford just pregnant wife, accompanied by his wife to go to the prenatal examination, noted that there are many pregnant women go into the hospital, but not go to the prenatal examination room, but a choice. Go to another room. Come out, but they don't have the baby.
These can't came to the world little life let song fook fook heartache, he decided to do for them something.
Song fook fook asked only learned that women are at abortion, many young pregnant women in the household, environment, or unable to outsiders be spoken reasons, had to choose to take away a child; some of them even has the offence after pregnancy, abortion will also know Caused quite a high risk of life, but still have to move an abortion.
These can't came to the world little life let song fook fook heartache, he decided to do for them something. Song fook fook asked the hospital said they could put has shape without being taken off of the fetus, took in his strong obsession. Next, the hospital agreed to his request.
As construction workers of the song, blessed with his life savings bought nha trang a mountain in front of the small open space, get here as those abortion baby cemetery. The start of his wife. Think He's crazy, but song fook fook always refused to give up this plan, he hoped that through this move, can give this little life to obtain the most basic respect. This is done in the year 15, song fook fook buried here too. More Than 1 million babies.
Kids from the start, after the burial song fook fook just feel hope, he can't just let them rest in peace, and if we want to live in these kids before it was an abortion to save them. This is not only the cemetery and memorial of mourning, he wishes he was here can touch some pregnant mom, let them change the abortion decision.
Song fook fook promised their aspirations, he from a cemetery caretaker who turned into an adoption of orphans.
Many unmarried mother or pregnant women find him for assistance, hope he can help save the stomach little life. Song fook fook promised their aspirations, he from a cemetery caretaker who turned into an adoption of orphans; wait till mom got normal work and life, let them go back to pick up the kids.
This place from cemetery gradually turned into a special nursery centre, is also more than 100 children's home. Sometimes the amount of kids, too many ford ford song to remember, the boy is named "Vinh" (on behalf of the honor), Girls are named "Tam" (meaning for the heart), Behind the name again. Pick up their mother's name and last name.
These kids for him, and not just someone else's a temporary crutch. On the contrary, it was more like his own flesh and blood. He'd rather suffer starving yourself, also don't want to see a mother because of the inability to raise and other reasons, take off your own child. Right now the inside of the 80 several kids, song fook fook are closest to them, and the most beloved father. His Spirit has affected many people; this few years local also set up many private orphanage, holding those going nowhere for the children.
He took away from the hospital on thousands of nameless baby after 15 years to become a legend
2016-07-20 thankful for big love
Life for everyone to have a different meaning, but very few people can completely selfless spirit to respect every life. In Vietnam Khánh Hòa Province (KH ÁNH HÒA) in the coastal city of nha Trang (Nha Trang), there is a legend, his name is called song Ford (Ford tống p hư ớc phúc), For the past 15 years, the fox song Ford's own strength saved more than 100 babies.
It all started in 2001, the year of the fox song ford just pregnant wife, accompanied by his wife to go to the prenatal examination, noted that there are many pregnant women go into the hospital, but not go to the prenatal examination room, but a choice. Go to another room. Come out, but they don't have the baby.
These can't came to the world little life let song fook fook heartache, he decided to do for them something.
Song fook fook asked only learned that women are at abortion, many young pregnant women in the household, environment, or unable to outsiders be spoken reasons, had to choose to take away a child; some of them even has the offence after pregnancy, abortion will also know Caused quite a high risk of life, but still have to move an abortion.
These can't came to the world little life let song fook fook heartache, he decided to do for them something. Song fook fook asked the hospital said they could put has shape without being taken off of the fetus, took in his strong obsession. Next, the hospital agreed to his request.
As construction workers of the song, blessed with his life savings bought nha trang a mountain in front of the small open space, get here as those abortion baby cemetery. The start of his wife. Think He's crazy, but song fook fook always refused to give up this plan, he hoped that through this move, can give this little life to obtain the most basic respect. This is done in the year 15, song fook fook buried here too. More Than 1 million babies.
Kids from the start, after the burial song fook fook just feel hope, he can't just let them rest in peace, and if we want to live in these kids before it was an abortion to save them. This is not only the cemetery and memorial of mourning, he wishes he was here can touch some pregnant mom, let them change the abortion decision.
Song fook fook promised their aspirations, he from a cemetery caretaker who turned into an adoption of orphans.
Many unmarried mother or pregnant women find him for assistance, hope he can help save the stomach little life. Song fook fook promised their aspirations, he from a cemetery caretaker who turned into an adoption of orphans; wait till mom got normal work and life, let them go back to pick up the kids.
This place from cemetery gradually turned into a special nursery centre, is also more than 100 children's home. Sometimes the amount of kids, too many ford ford song to remember, the boy is named "Vinh" (on behalf of the honor), Girls are named "Tam" (meaning for the heart), Behind the name again. Pick up their mother's name and last name.
These kids for him, and not just someone else's a temporary crutch. On the contrary, it was more like his own flesh and blood. He'd rather suffer starving yourself, also don't want to see a mother because of the inability to raise and other reasons, take off your own child. Right now the inside of the 80 several kids, song fook fook are closest to them, and the most beloved father. His Spirit has affected many people; this few years local also set up many private orphanage, holding those going nowhere for the children.
Thursday, June 30, 2016
a bereaved mother remembers.
a fellow bereaved mother shares her heartfelt emotions.
Annie OChen
11
years ago you came into the world quietly.....unlike the normal cry
that every parent expect to hear from their new born, we knew there'd be
no cry but silence.....11 years on it still breaks my heart not having you here with me~~~ baby Mikah, I love you so much, have a fantastic angel birthday....you are missed everyday!!
Monday, June 27, 2016
John Travolta
"They
say the hardest thing in the world is losing a parent. I can now say
that isn't true. The hardest thing in the world is losing a child.
Someone you raised and watched grow everyday. Someone you taught how to
walk and talk. Someone you showed how to love. It's the worst thing to
ever happen to anyone. My son died of a seizure. He brought me so much
joy. He was my everything. Those 16 years of
being his father taught me how to love unconditionally. We have to stop
and be thankful for our children and children should stop and be
thankful for their parents. Because, life is very short. Spend time with
your parents and parents spend time with your children. Treat them
well. Because, one day, when you look up from your phone, they won't be
there anymore. What I truly learned most of all is, love everyday like
it's your last. Because, one day, it will be. Take chances and go live
life. Tell the ones you love, that you love them everyday. Don't take
any moment for granted. Life is worth living."
Sunday, June 26, 2016
Driving with babies on the laps
https://www.facebook.com/photo.php?fbid=10155280240940541&set=gm.459434934204371&type=3&theater
I feel quite angry when a westerner is condescending, saying life in the east is cheap. My blood boiled when I see parents driving with a small baby on her lap, a toddler steering, and a smaller child on her lap.
Is it education? Is it policing to solve this issue?
Is life cheap? A mother who has lost her child will tell you no loss is cheap.
Ann Chin,
Writer, Diary of a bereaved Mother
I feel quite angry when a westerner is condescending, saying life in the east is cheap. My blood boiled when I see parents driving with a small baby on her lap, a toddler steering, and a smaller child on her lap.
Is it education? Is it policing to solve this issue?
Is life cheap? A mother who has lost her child will tell you no loss is cheap.
Ann Chin,
Writer, Diary of a bereaved Mother
Friday, June 24, 2016
Touch burning questions
Senior Pastor Jonathan Dove is a bereaved parent like me. In my experience with bereaved parents, a question often asked is," God, why did you take my child."
SUPPLIED
That's the question being posed by Auckland's Greenlane Christian Centre. The centre is running a fun initiative aiming to find out what New Zealanders really want to know about God. They've set up a website where members of the public can ask their questions anonymously, and the five most common questions will be addressed in Q & A sessions during their July services.
A team of trained theologians are behind the campaign, and they will be conducting research to answer the questions as thoroughly as they can.
Senior pastor Jonathan Dove says the campaign is getting a lot of attention.
Wednesday, March 23, 2016
Support Brendon in the Auckland Half Marathon with the Bowel Cancer NZ team
https://aucklandmarathon2016.everydayhero.com/nz/support-brendon-in-the-auckland-half-marathon-with-the-bowel
Support Brendon in the Auckland Half Marathon with the Bowel Cancer NZ team
My Story
I’d been thinking of running the
Auckland Half Marathon for some years, but it always sounded like too
much hard work! But I was reminded that in life, there are no promises
to escape the struggles and the need to persevere through tough stuff.
Some of you know that my cousin Jared lost a long and courageous battle with Bowel Cancer in 2014, and it was tough seeing the impact of this ghastly disease on him, his family and friends. But Jared was also an inspiration to me. He showed real loyalty to his close supporters, and with grit determination, he looked beyond himself to help others, continuing to work as a doctor (while having chemotherapy), and advocating for causes like Bowel Cancer NZ.
So my brother Shane and I are doing the 2016 Auckland half marathon together and all proceeds go to support Bowel Cancer NZ.
Please donate toward our run, which will enable Bowel Cancer NZ to raise awareness, educate and support other New Zealanders in need.
Also share this campaign with your friends – lets see if we can raise well over the target.
Thanks for supporting me!
Dr Jared Noel came to my church and spoke. He left behind two bereaved mothers, a wife and a mother.
Some of you know that my cousin Jared lost a long and courageous battle with Bowel Cancer in 2014, and it was tough seeing the impact of this ghastly disease on him, his family and friends. But Jared was also an inspiration to me. He showed real loyalty to his close supporters, and with grit determination, he looked beyond himself to help others, continuing to work as a doctor (while having chemotherapy), and advocating for causes like Bowel Cancer NZ.
So my brother Shane and I are doing the 2016 Auckland half marathon together and all proceeds go to support Bowel Cancer NZ.
Please donate toward our run, which will enable Bowel Cancer NZ to raise awareness, educate and support other New Zealanders in need.
Also share this campaign with your friends – lets see if we can raise well over the target.
Thanks for supporting me!
Dr Jared Noel came to my church and spoke. He left behind two bereaved mothers, a wife and a mother.
It is with deep sadness that we farewell Dr Jared Noel who passed
away in October 2014 at only 33 years of age after a long battle with
bowel cancer. Rest in Peace Jared.
http://tvnz.co.nz/20-20-news/living-dying-video-5186876
http://jarednoel.wordpress.com/
http://tvnz.co.nz/20-20-news/living-dying-video-5186876
http://jarednoel.wordpress.com/
Sunday, March 20, 2016
Josh’s recipe for life and help save lives by donating here.
http://www.melanoma.org.nz/help-us/donate-josh-emett-campaign/?utm_campaign=melanoma_awareness&utm_source=fbk&utm_medium=banner&utm_content=mela_110316_a_a_fbk_anf_ppl__def_all_v1
https://youtu.be/WqPXGzh2Oio
We’re the only charitable organisation in New Zealand dedicated to preventing deaths from melanoma and supporting those affected by it. We need both money and time to do our work effectively, so donations, bequests, sponsorship, fundraising and volunteers are hugely valuable to us. Please use the menu on the right to explore ways to help Melanoma New Zealand.
https://youtu.be/WqPXGzh2Oio
We’re the only charitable organisation in New Zealand dedicated to preventing deaths from melanoma and supporting those affected by it. We need both money and time to do our work effectively, so donations, bequests, sponsorship, fundraising and volunteers are hugely valuable to us. Please use the menu on the right to explore ways to help Melanoma New Zealand.
Friday, March 18, 2016
Grieving
In the book of fairy tales,
Girl meets boy,
They fall in love,
They marry,
They have children,
They live happily ever after.
In the book of melancholy,
The owl hoots,
The crow caws,
A loved child is taken,
A hole in the ground,
The heart bleeds.
Who understands?
Who says the right words?
Who soothes you with a balm?
Who lets you cry?
Who lets you grief without judging?
In the book of Christianity,
Reach out,
Cry out,
There is comfort,
There is healing,
There is light.
This is my story in a nut shell.
Wednesday, March 16, 2016
Drowned two-year-old twins were IVF 'miracle'
http://www.nzherald.co.nz/world/news/article.cfm?c_id=2&objectid=11605242
so hard to get them Via IVF and have them drown, Heart wrenching.
Save
The parents of two-year-old twin boys who drowned after falling into a
fish pond at their home in Scotland have paid tribute to their "miracle
babies" as it emerged the children were conceived using IVF.
Sarah Aitken, 32, and Mervyn Scott said their "long-awaited little soldiers" had been "full of love, happiness, fun and cheek" and they had been left devastated by the "freak" accident.
In a statement issued by Police Scotland, they said their sons, Shaun and Rhys Scott, had been "taken from us far too early and will be forever missed and loved."
Senior sources confirmed the "miracle babies" description was a reference to them having been conceived using IVF. Around one in six IVF pregnancies result in a multiple birth, whereas natural conceptions of twins occur in about one in 80 cases.
Officers are continuing to support the family and enquiries are being carried out to establish the full circumstances in which they boys died.
Emergency services were called to the scene in Dalgety Bay, Fife, on Saturday after the boys were found. They were taken to Victoria Hospital in Kirkcaldy where they were pronounced dead.
The twins' parents said: "We would like to thank everyone for their support at this unfortunate and difficult time. We have special thanks to all the medical staff, family, friends, neighbours and the police for their efforts, hard work and time spent helping and trying to revive our miracle babies.
"Both boys were long awaited little soldiers who were full of love, happiness, fun and cheek. Individually and together they have touched the lives of everyone they met.
"We along with our family and friends are still in shock and devastated at such a tragic loss from such a 'freak' accident. They have been taken from us far too early and will be forever missed and loved. We wish to be left alone and be given the privacy needed to grieve."
It is understood the family only recently moved into the rented home and the previous resident, Keith Henderson, ran a koi supply business from the property that required the installation of a fish tank at the side of the property.
The ornamental fish are collected by enthusiasts and tend to require large, deep ponds.
Devastated friends placed flowers outside the family home in a quiet cul-de-sac.
One said: "Rest in peace little ones. Hold each other's hands and stay close."
Another said: "Rest in peace lovely ones."
Keith McKinlay, 50, a Gulf War veteran who used to live beside the couple said: "Merv worked at the industrial estate in Dalgety Bay and so did Sarah. They are just laid back and a lovely couple and so easy to talk to. They were easy going and pleasant and did so much for me.
"I'm still in shock. You can't put that into words. Sarah must be devastated because she is quite a sensitive person. It must be devastating for the both of them.
"I know she wanted children and that she was chuffed when she found out they were expecting twins. Why take it away from her? It's just so unfair.
"I know they were trying hard to get the kids. I know she wanted kids but that there was some problem."
He added: "They will both be devastated. It's so unfair. It should not happen to anybody. My heart goes out to them."
Officers are supporting the family and working to establish the full circumstances of the incident.
so hard to get them Via IVF and have them drown, Heart wrenching.
Drowned two-year-old twins were IVF 'miracle'
9:42 AM Monday Mar 14, 2016
Sarah Aitken, 32, and Mervyn Scott said their "long-awaited little soldiers" had been "full of love, happiness, fun and cheek" and they had been left devastated by the "freak" accident.
In a statement issued by Police Scotland, they said their sons, Shaun and Rhys Scott, had been "taken from us far too early and will be forever missed and loved."
Senior sources confirmed the "miracle babies" description was a reference to them having been conceived using IVF. Around one in six IVF pregnancies result in a multiple birth, whereas natural conceptions of twins occur in about one in 80 cases.
Officers are continuing to support the family and enquiries are being carried out to establish the full circumstances in which they boys died.
Emergency services were called to the scene in Dalgety Bay, Fife, on Saturday after the boys were found. They were taken to Victoria Hospital in Kirkcaldy where they were pronounced dead.
The twins' parents said: "We would like to thank everyone for their support at this unfortunate and difficult time. We have special thanks to all the medical staff, family, friends, neighbours and the police for their efforts, hard work and time spent helping and trying to revive our miracle babies.
"Both boys were long awaited little soldiers who were full of love, happiness, fun and cheek. Individually and together they have touched the lives of everyone they met.
"We along with our family and friends are still in shock and devastated at such a tragic loss from such a 'freak' accident. They have been taken from us far too early and will be forever missed and loved. We wish to be left alone and be given the privacy needed to grieve."
It is understood the family only recently moved into the rented home and the previous resident, Keith Henderson, ran a koi supply business from the property that required the installation of a fish tank at the side of the property.
The ornamental fish are collected by enthusiasts and tend to require large, deep ponds.
Devastated friends placed flowers outside the family home in a quiet cul-de-sac.
One said: "Rest in peace little ones. Hold each other's hands and stay close."
Another said: "Rest in peace lovely ones."
Keith McKinlay, 50, a Gulf War veteran who used to live beside the couple said: "Merv worked at the industrial estate in Dalgety Bay and so did Sarah. They are just laid back and a lovely couple and so easy to talk to. They were easy going and pleasant and did so much for me.
"I'm still in shock. You can't put that into words. Sarah must be devastated because she is quite a sensitive person. It must be devastating for the both of them.
"I know she wanted children and that she was chuffed when she found out they were expecting twins. Why take it away from her? It's just so unfair.
"I know they were trying hard to get the kids. I know she wanted kids but that there was some problem."
He added: "They will both be devastated. It's so unfair. It should not happen to anybody. My heart goes out to them."
Officers are supporting the family and working to establish the full circumstances of the incident.
Tuesday, March 8, 2016
Auckland doctor accused of negligence after baby dies
"He did not talk to me, he did not explain to me what he was doing...he seemed to completely ignore me as if I didn't count."
This was how I felt when the specialist treated me when I was admitted to antenatal care.
An experienced Auckland doctor is alleged to have ignored the advice of colleagues, leading to the death of an unborn baby.
The doctor, who has interim name suppression, appeared before the Health Practitioners Disciplinary Tribunal on Monday.
He was in charge of the mother's care in October 2011 when she arrived at North Shore hospital after her waters broke.
The pregnancy was the woman's fifth and she was deemed high risk because of her age.
Just after 9pm a cardiotocograph (CTG) recorded a low heart rate in the baby and the doctor was called into the room.
The charge against the doctor alleges the baby was suffering from a condition known as prolonged bradycardia, which is when the heart rate has fallen below 100 beats per minute and remains that way for more than five minutes. It requires urgent medical attention.
Director of proceedings Nicola Wills said the accepted practice for an obstetrician is to make preparations for urgent delivery if a baby has been bradycardic for more than three minutes and move to an emergency caesarean section if the heart rate has not recovered in nine minutes.
But in this case the doctor failed to recognise and respond to the situation for a period of 29 minutes before calling for an emergency caesarean section.
The baby was eventually delivered stillborn.
Giving evidence through tears, the mother said she was frightened by the doctor's manner when he arrived in the delivery room, describing him as "grumpy" and "aggressive".
"He did not talk to me, he did not explain to me what he was doing...he seemed to completely ignore me as if I didn't count."
The doctor said that throughout the day when the mother was in hospital, he consulted frequently with her midwife.
But the midwife denied this, claiming the doctor only called into the midwives' office a few hours before the incident, stating he wanted to go and watch the Rugby World Cup semifinal in a nearby room.
In her submission, Wills said the doctor either did not understand one of the most basic and fundamental core competencies of an obstetrician or chose to ignore it.
It is alleged the doctor did not speak to the mother or her husband at all during the ordeal, including explaining the baby's heart rate, what it meant, what her options were or what he recommended.
After the CTG recording the doctor decided to wait for a registrar to arrive before performing a lactate, a blood test of the baby that would confirm fetal compromise.
When the registrar arrived she immediately recognised the seriousness of the situation and told the doctor a caesarean section should be performed.
He refused and insisted on a lactate test, which eventually returned bad results. But by then it was too late.
The hearing continues this week.
This was how I felt when the specialist treated me when I was admitted to antenatal care.
Auckland doctor accused of negligence after baby dies
The doctor, who has interim name suppression, appeared before the Health Practitioners Disciplinary Tribunal on Monday.
He was in charge of the mother's care in October 2011 when she arrived at North Shore hospital after her waters broke.
The pregnancy was the woman's fifth and she was deemed high risk because of her age.
Just after 9pm a cardiotocograph (CTG) recorded a low heart rate in the baby and the doctor was called into the room.
The charge against the doctor alleges the baby was suffering from a condition known as prolonged bradycardia, which is when the heart rate has fallen below 100 beats per minute and remains that way for more than five minutes. It requires urgent medical attention.
Director of proceedings Nicola Wills said the accepted practice for an obstetrician is to make preparations for urgent delivery if a baby has been bradycardic for more than three minutes and move to an emergency caesarean section if the heart rate has not recovered in nine minutes.
But in this case the doctor failed to recognise and respond to the situation for a period of 29 minutes before calling for an emergency caesarean section.
The baby was eventually delivered stillborn.
Giving evidence through tears, the mother said she was frightened by the doctor's manner when he arrived in the delivery room, describing him as "grumpy" and "aggressive".
"He did not talk to me, he did not explain to me what he was doing...he seemed to completely ignore me as if I didn't count."
The doctor said that throughout the day when the mother was in hospital, he consulted frequently with her midwife.
But the midwife denied this, claiming the doctor only called into the midwives' office a few hours before the incident, stating he wanted to go and watch the Rugby World Cup semifinal in a nearby room.
In her submission, Wills said the doctor either did not understand one of the most basic and fundamental core competencies of an obstetrician or chose to ignore it.
It is alleged the doctor did not speak to the mother or her husband at all during the ordeal, including explaining the baby's heart rate, what it meant, what her options were or what he recommended.
After the CTG recording the doctor decided to wait for a registrar to arrive before performing a lactate, a blood test of the baby that would confirm fetal compromise.
When the registrar arrived she immediately recognised the seriousness of the situation and told the doctor a caesarean section should be performed.
He refused and insisted on a lactate test, which eventually returned bad results. But by then it was too late.
The hearing continues this week.
- Stuff
Monday, March 7, 2016
parents-heartbreaking-decision-
http://www.chroniclelive.co.uk/news/north-east-news/gateshead-parents-heartbreaking-decision-take-11003811
This story is similar to my story. Their son lived 6 weeks, our Andrew survived 7 and 1/2, 55 days.
We too took of his live support machine.
This story is similar to my story. Their son lived 6 weeks, our Andrew survived 7 and 1/2, 55 days.
We too took of his live support machine.
Wednesday, March 2, 2016
Kiwi families rejecting organ donation
Six in 10 families refused to
donate an eligible loved one's organs last year, the highest rejection
rate in the world according to one campaigner.
File Picture.
Source: istock.com
Organ donation was possible for 367
deaths last year according to GiveLife NZ but organ donation was only
discussed with the family in 135 instances, or 37 per cent of the time.
The number of remaining potential donors shrinks further when families have their say with 61 per cent saying no.
Overall, there were just 53 donors in New Zealand in 2015.
In order for an organ donation to be possible, two separate sets of brain death assessments need to be carried out by doctors.
Organ donation is then discussed with the family.
"It turns out that three of the
53 donors didn't actually donate any organs to anyone so the figures
are massaged upwards to make a very, very poor system look like just a
very poor system," organ donation campaigner Andy Tookey said.
"It must be clearly understood:
New Zealand will never have a world-class donation and transplantation
service if more than six out of every 10 families say no to donation."
New Zealand is in the lower
half of organ donors according to the international registry of organ
donation and transplantation IRODaT.No wonder the hospital and doctors were very grateful when I consented to donate Andrew's body for science. Every now and then, they came to ask me if I had changed my mind.
When we finally handed Andrew's dead body, the nursing manager took Andrew and said,"On behalf of the hospital, I thank you for Andrew."
It was only much later, I learn that people didn't want to give their loved ones' body.
And why did I agreed to give away Andrew's body? I rationalised that Andrew was no use to me, I might as well let him be useful to Science.
Did I regret?
I did for a while because I had to give him up when I wanted to spend more time with him, and also I was counseled not to view him because they would have cut him up and it would be too gruesome to view him.
https://www.tvnz.co.nz/one-news/new-zealand/kiwi-families-rejecting-organ-donation
Tuesday, March 1, 2016
13-year-old boy and he just went to sleep one night - and he never woke up.
His mum and dad, Graeme, were still coming to terms with the sudden death of their eldest son. "He was a 13-year-old boy and he just went to sleep one night -- this was on Saturday -- and he never woke up. For some unknown reason his heart stopped. He had a big heart, he had just had a full day at athletics. In our eyes he was very talented and a hero and he just didn't wake up," Mrs Carran said.
http://www.nzherald.co.nz/sport/news/article.cfm?c_id=4&objectid=11598172
Monday, February 29, 2016
Youtube It's ok to cry and rare disease day
When I wrote my book, Diary of a bereaved mother, it was to help new
bereaved mothers and to help myself. Television New Zealand asked me
if I wanted to help them do a documentary. It was to help other
bereaved mothers.
It was very hard to do the documentary.
Today is is world rare disease day.
http://www.youtube.com/watch?v=IZk9w-uywAs&feature=youtu.be
http://www.youtube.com/watch?v=IZk9w-uywAs&feature=youtu.be
The TV Program is available in New Zealand only.
http://tvnz.co.nz/asia-downunder/s2011-e31-video-4453514
http://www.rarediseaseday.org/article/what-is-rare-disease-day
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
winter birds.
Rain in the afternoon,
Rain in the evening,
Rain in the night.
Feeling poignant,
I look at the rain,
and feel that they are tears inside me.
I remember this poem I wrote.
It is blustery cold.
In 4 days,
It will be the shortest day of the year.
The wind is howling,
The rain is pouring.
Oh _____,
The b______ birds,
They have come in the house again.
I go ______. ______, _______.
I have lost my poetic mood.
Get out! bird, _________.
Billy Ung I was walking along Hoddle St one morning after a stormy night. The medium strip was littered with dead sparrows. Mother Nature is unforgiving and only allows the fittest to survive. Sometimes just being fit is not enough in a natural disaster.
Rare disease day
Words of healing
6:00 AM Friday Jun 3, 2011
But the days that followed the birth of her son, Andrew, proved anything but normal.
"Once I had my baby they realised he was dying," she says, of his diagnosis of Campomelic syndrome; a bone and cartilage condition resulting in short limbs and breathing problems because of a small chest capacity.
http://m.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11597016
My Son Andrew had Campomelic displasia or syndrome. It is a rare disease.
http://www.rarediseaseday.org/article/what-is-rare-disease-day
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Sunday, February 28, 2016
Waikumete Cemetery: Open Day
photo from Radio New Zealand
Words of healing
6:00 AM Friday Jun 3, 2011
But the days that followed the birth of her son, Andrew, proved anything but normal.
"Once I had my baby they realised he was dying," she says, of his diagnosis of Campomelic syndrome; a bone and cartilage condition resulting in short limbs and breathing problems because of a small chest capacity.
http://m.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11597016
Our national paper heads it as
Auckland's 'Day of Death', would you go to a cemetery's open day?
I got involved in Waikumete Cemetery, my late baby boy was buried here in 1989
The cemetery is New Zealand's largest, and the final resting place for over 70,000 people. At 108 hectares, it is also one of the region's largest public parks.On Sunday, it will try to demystify the morbidity of death, displace some of the apprehension around cemeteries and burial practices, explain the historical relevance of cemeteries and explore cultural differences in the treatment of lost loved ones.
Wednesday, February 17, 2016
When Life Stands Still, Find Your Fellow Survivors
When Life Stands Still, Find Your Fellow Survivors
The words were spoken with a hush, gently and quietly as the dim lights softly flickered in a darkened hospital room while I held my 6 ½-month-old child, his last breath taken hours before.
After spending nearly seven months in a pediatric cardio thoracic ICU with my infant son, the hard part should have been behind me. And yet, it wasn’t. I knew it, but I didn’t want to know it.
Life stood still in that moment. I didn’t know how I would pick myself up and keep going. I was young, but my future just looked crumbly and I was buried in grief. All the perfect pictures I created of how my life would look months and years before weren’t my reality. Mine was supposed to look like two boys, 15 months apart, growing up together, playing cars on the living room floor, me breaking up fights with time-outs, them running out to the backyard and getting dirt under their fingernails as they dug for worms.
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We’d talk, we’d laugh, and at the end of the night, I’d tuck them both into bed in the room they shared, kissing their foreheads and turning out the light. I’d complain about my lack of sleep and my lack of sanity and all the silly things they did. We’d be stressed, happy and slightly dysfunctional, but we’d be together. It would be normal. And as far as I knew, nothing would get in the way of that. As far as I knew, life would unfold without a hitch.
But none of those dreams would come true. Instead, I sit here on the other side of my younger son’s six-and-a-half-month-long hospitalization after he was born and postnatally diagnosed with a serious, severe form of congenital heart disease and another disease that I now know as a curse word: pulmonary hypertension. I sit here on the other side of his death, having held him in my arms as he breathed his last breath. I sit here on the other side of my divorce, one that had been a long time coming, and that only through my younger son giving me strength did I have the courage to do what I knew I had to do. I sit here on the other side of 11 months of grief—horrible, agonizing, grief. I sit here, seemingly crushed. I sit here, all of my former dreams shattered.
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I’m surrounded by fellow survivors, much further along in this journey through hell than I. People who have learned to carry on when their lives are reduced to ashes. People who have stood their ground through deep pain and searing loss. People who have learned what it is to will their own heart to keep on beating, who put one foot in front of the other, even when they limp. These ones are my teachers, my guides, and my brothers and sisters. They are the ones I look to and remember that no matter how hard life gets, I’m never alone.
From them, I’ve learned that the most radiant people aren’t the ones you see on billboards or whose names are in lights. It’s the quiet survivors who have been shattered beyond belief and have overcome. The ones who grit their teeth and carry on, day after day, clinging like hell to hope, even if it’s by a single strand.
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None of my former dreams have come to pass, and truly, they never will. This is the hard part, and yet, even in the darkest moments, in our deepest grief, when we reach out, reach up, and let love and hope in, we can claw our way back to hope and joy. We can take the next breath, and the next, and after time, we find that it comes a little more easily. We take the next step, and we realize that no matter how weak we feel, that we all can overcome.
About the writer
Lexi Behrndt
Lexi Behrndt is a writer and mom to two boys, one in heaven. She writes on her blog, Scribbles and Crumbs, and her work has also appeared on The Washington Post, The Huffington Post and ABC News. Find her on Facebook.
Tuesday, February 16, 2016
The Edge radio host reveals miscarriage trauma
The Edge radio host reveals miscarriage trauma
Supplied
Casey and her husband, fellow DJ Bryce Casey, from The Rock, decided to speak out about their loss following a second unsuccessful pregnancy.
"We went through this pretty much in silence. Sure, our families knew, a couple of people we were very close to at work knew… but that was it."
"We were silent because we almost felt embarrassed that this [had] happened to us, we felt embarrassed to tell our closest friends," Casey wrote in an emotional blog post.
READ MORE:
* Toni Street thanks fans for their support in her battle with illness
* Toni Street's private health battle revealed
* Toni Street takes Breakfast spot
FACEBOOK/SHARYN CASEY
The former Dancing with the Stars co-host revealed she was "happy beyond belief" when she first discovered she was pregnant.
"Every moment revolved around doing the right thing by my baby – what I ate, the exercise I did, not stressing myself… I have never felt such intense love for something I'd never met."
FACEBOOK/SHARYN CASEY
"It wasn't there, the baby is gone, it wasn't there".
The radio and television personality chose to speak up in order to encourage other Kiwi women going through similar experiences to do the same.
FACEBOOK/SHARYN CASEY
"Don't suffer in silence. Talk to people about how you're feeling, grieve for your loss and don't ever think you're less because you had [a miscarriage] because you're not."
- Stuff
http://www.stuff.co.nz/entertainment/76898063/the-edge-radio-host-reveals-miscarriage-trauma?cid=facebook.post.76898063
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